“I wish I'd been accepted sooner and better. When I was younger, not being accepted made me enraged, but now, I am not inclined to dismantle my history. If you banish the dragons, you banish the heroes--and we become attached to the heroic strain in our personal history. We choose our own lives. It is not simply that we decide on the behaviors that construct our experience; when given our druthers, we elect to be ourselves. Most of us would like to be more successful or more beautiful or wealthier, and most people endure episodes of low self-esteem or even self-hatred. We despair a hundred times a day. But we retain the startling evolutionary imperative for the fact of ourselves, and with that splinter of grandiosity we redeem our flaws. These parents have, by and large, chosen to love their children, and many of them have chosen to value their own lives, even though they carry what much of the world considers an intolerable burden. Children with horizontal identities alter your self painfully; they also illuminate it. They are receptacles for rage and joy-even for salvation. When we love them, we achieve above all else the rapture of privileging what exists over what we have merely imagined.A follower of the Dalai Lama who had been imprisoned by the Chinese for decades was asked if he had ever been afraid in jail, and he said his fear was that he would lose compassion for his captors. Parents often think that they've captured something small and vulnerable, but the parents I've profiled here have been captured, locked up with their children's madness or genius or deformity, and the quest is never to lose compassion. A Buddhist scholar once explained to me that most Westerners mistakenly think that nirvana is what you arrive at when your suffering is over and only an eternity of happiness stretches ahead. But such bliss would always be shadowed by the sorrow of the past and would therefore be imperfect. Nirvana occurs when you not only look forward to rapture, but also gaze back into the times of anguish and find in them the seeds of your joy. You may not have felt that happiness at the time, but in retrospect it is incontrovertible.For some parents of children with horizontal identities, acceptance reaches its apogee when parents conclude that while they supposed that they were pinioned by a great and catastrophic loss of hope, they were in fact falling in love with someone they didn't yet know enough to want. As such parents look back, they see how every stage of loving their child has enriched them in ways they never would have conceived, ways that ar incalculably precious. Rumi said that light enters you at the bandaged place. This book's conundrum is that most of the families described here have ended up grateful for experiences they would have done anything to avoid.”

“You see, Novelka, in an odd sort of way, some of our strongest relationships are with people who have died. We miss the person, we think of them, we wonder what they would want us to do, how they would want us to act. Though they are not here, they still strongly influence our lives. And so we go on loving them, sometimes even more, when they are gone.”

“Parents have such formidable power. They can protect you from all the pain in the world. Or inflict the hardest pain of all. And as children we accept what we get. Perhaps we believe that anything is better than that which we all fear the most. Loneliness. Abandonment. But once you accept that fact that you have always been alone, and will always be, then your perspective can being to change. You can become aware of the small kindnesses, the little comforts. Be grateful for them. And with time you will understand that there is nothing to fear. And much to be grateful for. For me, the realization took a lifetime. Don't let it take you that long, Veronika. (189)”

“To look deep into your child's eyes and see in him both yourself and something utterly strange, and then to develop a zealous attachment to every aspect of him, is to achieve parenthood's self-regarding, yet unselfish, abandon. It is astonishing how often such mutuality had been realized - how frequently parents who had supposed that they couldn't care for an exceptional child discover that they can. The parental predisposition to love prevails in the most harrowing of circumstances. There is more imagination in the world than one might think.”

“When we were teenagers, we would imagine that when we had daughters of our own, we wouldn't be so strict. We would give them room to explore, let them decide for themselves if they wanted to follow this way of life. But once we were in the parental role, it wasn't as simple. We wanted our daughters to grow up and get married, to have Jewish homes and raise Jewish families. We wanted them to pass on this tradition to their children and to their children's children. We didn't want them to be exposed to bad influences, ones that might make them steer from this path that had been set out for them since birth. We wanted them to avoid the confusion of the modern world, where no one seemed to believe in anything anymore. We wanted them to always feel rooted in their tradition, to be close to their families, their community, and God. And we didn't know how to do that if we made no ground rules, set down no boundaries.”

“Parents’ early responses to and interactions with a child determine how that child comes to view himself. These parents are also profoundly changed by their experiences. If you have a child with a disability, you are forever the parent of a disabled child; it is one of the primary facts about you, fundamental to the way other people perceive and decipher you. Such parents tend to view aberrance as illness until habituation and love enable them to cope with their odd new reality—often by introducing the language of identity. Intimacy with difference fosters its accommodation.”

“In the heat of an argument, my mother once told me, "Someday you can go to a therapist and tell him all about how your terrible mother ruined your life. But it will be your ruined life you're talking about. So make a life for yourself in which you can feel happy, and in which you can love and be loved, because that's what's actually important." You can love someone but not accept him; you can accept someone but not love him. I wrongly felt the flaws in my parents' acceptance as deficits in their love. Now, I think their primary experience was of having a child who spoke a language they'd never thought of studying.”