“Give up Robert." He opened his eyes. "Quit now and we'll go easy on you." -Price Sisters”
“If there's one thing Robert had learned in three weeks at Lovecraft Middle School, it's that nothing was impossible.”
“He scanned the page looking for an entry that read, "Help! I'm Almost Thirteen Years Old and I Still Have the Muscles of a Third-Grader!" but apparently Robert's condition was so freakish and rare, the authors of the book didn't even bother to include it.”
“People often ask me: What are your goals and hopes and dreams for Benj? And the answer is so simple: That he be seen whole against the sky. That he not suffer beyond his and my capacity to bear it. That he be allowed to enjoy the pleasures of "his own private nook" and come out of that nook for joyful engagement with others. That he always hold on to his visionary gleam, his bright radiance.”
“Children put everything in perspective, they remind you of what's important, you see the world anew through there eyes.”
“In the last month, I've realized in a way I never had before that this is and will be my life -- this day-to-day work on and for and with Benj. He will improve and develop and there will be many rewarding moments. But he has a lifelong disability and he will always need loads of effort on his behalf, both in every single interaction with him and with his teachers and therapists. It can be extremely exhausting and overwhelming... But the blessings of being his mother far outweigh the worry and stress and fatigue. Truly he has made me an infinitely stronger, more patient and compassionate person. I can do this.”
“I didn't want to think of Benj in terms of syndromes and categories and labels and diagnoses, in terms of his performance on tests and evaluations, in terms of his differences from a perceived norm or imagined ideal. One of the questions my experience with Benj raised for me is: how do you value your child in a culture whose benchmarks for achievement and whose standards for evaluating and assessing kids are so out of line with your own values and who your child is?”