“A caregiver is changed by the culture of illness, just as one is changed by the dynamic era in which one lives. For one thing, I don't have as much time in conversation with myself, and I feel the loss. Certainly I worry more about his death, and mine too, since I;m so much a part of the evolving saga of his health, which I have to monitor every day. But I've grown stronger in every aspect of my life. In small ways: speaking more directly with people. In large ways: discovering I can handle adversity and potential loss and yet keep going. I've a better idea of my strength. I feel like I've been tested, like a willow whipped around violently in a hurricane, but still stranding, its roots strong enough to hold. [p. 301]”

“I'm not going to change the way I look or the way I feel to conform to anything. I've always been a freak. So I've been a freak all my life and I have to live with that, you know. I'm one of those people.”

“I've never felt normal, because I'm not normal, and I don't wanna be. I've had to face death and loss and pain in your world, but I've also never felt stronger, like more real, more myself, because it's my world too. It's where I belong.”

“If you want to be reborn,' it is written in the Tao Te Ching, 'let yourself die.' This is what I've been having trouble with, the fact that letting go can feel, at times, like a death. Someday, I know, I will lose everything. All the small deaths along the way are practice runs for the big ones, asking us to learn to be present, to grow in faith, to be grateful for what is. Life is finite and short. But this new task, figuring out how to let go of so much that has been precious -- my children, my youth, my life as I know it -- can feel like a bitter foretaste of other losses yet to come.”

“I am a quiet man. I tend to think things through and try not to say too much. But here I am, saying perhaps too much. But there are these feelings inside me which need badly to escape, I guess. And this makes me feel relieved because one of my big concerns these past few years is that I've been losing my ability to feel things with the same intensity- the way I felt when I was younger. It's scary- to feel your emotions floating away and just not caring. I guess what's really scary is not caring about the loss.”

“Friends. Strange indeed. There's just so much at risk, including my heart and mental stability - which are both still extremely fragile. I'm getting better but my heart still aches for you. I'm also having a hard time dealing with the fear. I don't want to be sad anymore. I don't want to cry, worry, or be scared anymore. I just wish I could feel free and happy again. If I can't talk to you at all, it's unbearable. If I talk to you too much, it's unbearable. It doesn't leave much. I want us both to be happy. I just want everything to be okay for you and me. I don't want anyone else to hurt. I feel like I've hurt enough for everyone. I've cried enough tears to fill everyone's bucket.”