“I do feel responsible. He used to be able to look after himself. Now he can't. That's so different, so strange. The big question is: Is more improvement really possible, or should I stop pushing him?' [p. 153]”

“So much in a relationship changes when a partner is seriously ill, helpless yet blameless, and indefatigably needy. I felt old. [p. 99] The animal part of him in pain accepted my caring. But the part of himself watching himself in that pain didn't believe I could ever respect him again. None of this crossed my mind. I couldn't risk knowing it. No one could and continue caregiving. They'd feel so unappreciated and wronged that it would drive them away. [p. 100]”

“I'd suffered many losses in recent years after my father mother uncle aunt and cousin had all passed away. In her final years my mother often lamented that there was no one alive who had known her as a girl and I was starting to understand how spooked she'd felt. I wasn't sure I could take any more abandonments. One succumbs so easily to mind spasms, worry spasms. [p. 95]”

“Out of the blue, Paul reported feeling bouts of calm euphoria, a mystical sense of all's-right-with-his-life-and-the-universe, a bright future in sight. ... I knew well the state of vigorous calm he meant, a frequent visitor throughout my own life. [p. 290]”

“I understood the therapists were trying to rebuild Paul's vocabulary, beginning wit the rudiments, but Paul found it taxing, boring, and disturbingly condescending. His loss of language didn't mean he was any less a grown-up with adult feelings, experiences, worries, and problems. [p. 144]”

“Our days flowed around well-charted, often traveled courses, and yet, the underlying sense of falling out of time, out of the trajectory of one's life, not by choice, but by subtraction, was frequent and disquieting. Then I grieved for him, for the lost and previous Paul. He grieved for that man too. Both our griefs were mainly private, internal, unuttered. Return was impossible, and there was only one direction open ; and so we kept our compass pointed forward. [p. 286]”

“A caregiver is changed by the culture of illness, just as one is changed by the dynamic era in which one lives. For one thing, I don't have as much time in conversation with myself, and I feel the loss. Certainly I worry more about his death, and mine too, since I;m so much a part of the evolving saga of his health, which I have to monitor every day. But I've grown stronger in every aspect of my life. In small ways: speaking more directly with people. In large ways: discovering I can handle adversity and potential loss and yet keep going. I've a better idea of my strength. I feel like I've been tested, like a willow whipped around violently in a hurricane, but still stranding, its roots strong enough to hold. [p. 301]”