“I'd suffered many losses in recent years after my father mother uncle aunt and cousin had all passed away. In her final years my mother often lamented that there was no one alive who had known her as a girl and I was starting to understand how spooked she'd felt. I wasn't sure I could take any more abandonments. One succumbs so easily to mind spasms, worry spasms. [p. 95]”
“So much in a relationship changes when a partner is seriously ill, helpless yet blameless, and indefatigably needy. I felt old. [p. 99] The animal part of him in pain accepted my caring. But the part of himself watching himself in that pain didn't believe I could ever respect him again. None of this crossed my mind. I couldn't risk knowing it. No one could and continue caregiving. They'd feel so unappreciated and wronged that it would drive them away. [p. 100]”
“A caregiver is changed by the culture of illness, just as one is changed by the dynamic era in which one lives. For one thing, I don't have as much time in conversation with myself, and I feel the loss. Certainly I worry more about his death, and mine too, since I;m so much a part of the evolving saga of his health, which I have to monitor every day. But I've grown stronger in every aspect of my life. In small ways: speaking more directly with people. In large ways: discovering I can handle adversity and potential loss and yet keep going. I've a better idea of my strength. I feel like I've been tested, like a willow whipped around violently in a hurricane, but still stranding, its roots strong enough to hold. [p. 301]”
“I may enter a zone of transcendence, in which I marvel at all the accidents of fate, since the beginning of life on earth, that led to my genes being created and my standing in this particular garden in a contemplative and imagining mind. I’ve been reading recently how reflection evolved. what a fascinating solution to the rigors of survival…how amazing that a few basic ingredients- the same ones that form the mountains, plants, and rivers- when arranged differently and stressed could result in us.More and more of late, I find myself standing outside of life, with a sense of the human saga laid out before me. it is a private vision, balanced between youth and old age, a vision in which I understand how caught up in striving we humans get, and a little of why, and how difficult it is even to recognize, since it feels integral to our nature and is. but I find it interesting that, according to many religions, life and begins and ends in a garden.”
“Sometimes with a flutter of agitated worry that felt like a beetle was trapped inside my ribs. p. 90”
“I understood the therapists were trying to rebuild Paul's vocabulary, beginning wit the rudiments, but Paul found it taxing, boring, and disturbingly condescending. His loss of language didn't mean he was any less a grown-up with adult feelings, experiences, worries, and problems. [p. 144]”
“I do feel responsible. He used to be able to look after himself. Now he can't. That's so different, so strange. The big question is: Is more improvement really possible, or should I stop pushing him?' [p. 153]”