“So much in a relationship changes when a partner is seriously ill, helpless yet blameless, and indefatigably needy. I felt old. [p. 99] The animal part of him in pain accepted my caring. But the part of himself watching himself in that pain didn't believe I could ever respect him again. None of this crossed my mind. I couldn't risk knowing it. No one could and continue caregiving. They'd feel so unappreciated and wronged that it would drive them away. [p. 100]”
“A caregiver is changed by the culture of illness, just as one is changed by the dynamic era in which one lives. For one thing, I don't have as much time in conversation with myself, and I feel the loss. Certainly I worry more about his death, and mine too, since I;m so much a part of the evolving saga of his health, which I have to monitor every day. But I've grown stronger in every aspect of my life. In small ways: speaking more directly with people. In large ways: discovering I can handle adversity and potential loss and yet keep going. I've a better idea of my strength. I feel like I've been tested, like a willow whipped around violently in a hurricane, but still stranding, its roots strong enough to hold. [p. 301]”
“I do feel responsible. He used to be able to look after himself. Now he can't. That's so different, so strange. The big question is: Is more improvement really possible, or should I stop pushing him?' [p. 153]”
“I'd suffered many losses in recent years after my father mother uncle aunt and cousin had all passed away. In her final years my mother often lamented that there was no one alive who had known her as a girl and I was starting to understand how spooked she'd felt. I wasn't sure I could take any more abandonments. One succumbs so easily to mind spasms, worry spasms. [p. 95]”
“Sometimes with a flutter of agitated worry that felt like a beetle was trapped inside my ribs. p. 90”
“Our days flowed around well-charted, often traveled courses, and yet, the underlying sense of falling out of time, out of the trajectory of one's life, not by choice, but by subtraction, was frequent and disquieting. Then I grieved for him, for the lost and previous Paul. He grieved for that man too. Both our griefs were mainly private, internal, unuttered. Return was impossible, and there was only one direction open ; and so we kept our compass pointed forward. [p. 286]”
“At some point, one asks, "Toward what end is my life lived?" A great freedom comes from being able to answer that question. A sleeper can be decoyed out of bed by the sheer beauty of dawn on the open seas. Part of my job, as I see it, is to allow that to happen. Sleepers like me need at some point to rise and take their turn on morning watch for the sake of the planet, but also for their own sake, for the enrichment of their lives. From the deserts of Namibia to the razor-backed Himalayas, there are wonderful creatures that have roamed the Earth much longer than we, creatures that not only are worthy of our respect but could teach us about ourselves.”