“Ben Young is out on the deck with his team, having breakfast through his tube. I wonder how that feels. He seems to be content with it, although I am having some trouble reconciling the fact that Ben does not get all the big tastes anymore. He used to love Milanos and milk after every evening dinner. It was a tradition. Sometimes we still give him a tiny taste just for old times' sake. He is so accepting. It's a marvel. He is the most accepting human being I have ever met, and he is very happy. Not all the time, mind you; he has a flair for impatience if he is going somewhere and there is a delay. He just yells! You know he is pissed. There is no stopping him. More power to you, Ben Young!We had to stop feeding Ben Young by mouth because his lungs have become compromised by all the aspirating he does. It's a complex thing, eating. The body does a lot of work to protect itself and keep food out of the lungs. Ben's body is not working like a normal body does. Ben and Dustin and Uncle Tony are out on the deck listening to tunes on the computer and grooving. Ben's next support team is incoming for a shift. Uncle Marian and Ben Bourdon arrive in Hawaii today from the mainland, and the switch takes place around twelve-thirty. Time marches on. Because of the support, Ben has a very full life and keeps moving around, doing things, seeing people and going to events. I reflect on this. Life is good.”

“You might notice I refer to my son Ben as Ben Young all the time. Larry (Johnson) always called his son Ben Johnson. I liked the pride with which he would say "Ben Johnson." It is a lingering memory of his great spirit.”

“We shared a piece of Poncho's apple pie, and I told Poncho about PureTone. Like all serious musicians, he is depressed by the quality of sound the people's music id delivered in today. That is the impression I have gotten from every Musician I have met. Everyone. After he heard PureTone, Ben Bourdon, one of Ben Young's caregivers asked me if I was making war on Apple. I said, "No. I'm waging heavy peace.”

“I know his death could have been avoided with a doctor who was really on top of it. He had so much life in him. It was wrong. I played my way through that first show and did "Old Man" for Ben (Keith) at the end. I looked over to my right and he was out there somewhere, but not next to me anymore.”

“Our family was starting. We kept on moving with our young lives, shortly afterward and took Ben Young with us everywhere. But pretty soon Pegi started noticing that Ben was not doing the things some other babies were doing. Pegi was wondering if something was wrong. She was young, and nothing had ever gone wrong in her life. People told us kids grow at different rates and do things at different times.But as Ben reached six months old, we found ourselves sitting in a doctor's office. He glanced at us and offhandedly said, "Of course. Ben has cerebral palsy."I was in shock. I walked around in a for for weeks. I couldn't fathom how I had fathered two children with a rare condition that was not supposed to be hereditary, with tow different mothers. I was so angry and confused inside, projecting scenarios in my mind where people said something bad about Ben or Zeke and I would just attack them, going wild. Luckily that never did happen, but there was a root of instability inside me for a while. Although it mellowed with time, I carried that feeling around for years.Eventually Pegi and I, wanting to have another child after Ben, went to se an expert of the subject. That was Pegi's idea. Always organized and methodical in her approach to problems, Pegi planned an approach to our dilemma with her very high intelligence. We both loved children but were a little gun-shy about having another, to say the least. After evaluating our situation and our children, the doctor told us that probably Zeke dis not actually have CP-he likely had suffered a stroke in utero. The symptoms are very similar. Pegi and I weighed this information. To know someone like her and to make a decision about a subject as important as this with her was a gift beyond anything I have ever experienced. It was her idea, and she had guided us to this point. We made a decision together to go forward and have another child.”

“Bruce is still my friend. We don't talk much. We don't have to. He is great and in his own league. I'm not him and he is not me. But we are on similar paths, writing and singing out own kind of songs around the world, along with Bob and a few other singer/songwriters. It is a a silent fraternity of sorts, occupying this space in people's souls with our music. Last year, I lost my right-hand man, the pedal steel guitarist Ben Keith. This year Bruce lost his right-hand man, the saxophonist Clarence Clemons. It's time for another talk; friends can help each other just by being there. Now both of us will look to our right and see a giant hole, a memory, the past and the future. I won't play with another steel player trying to recreate Ben's parts, and I know Bruce won't play with another sax man trying to play Clarence's. Those parts are not going to happen again. They already did. That takes a lot out of our repertoires.”

“I made a record called Island in the Sun about the planet Earth and invited David over to hear it at the house I had rented in Hawaii. We was not impressed with it and asked me to do something else. That was the first time that had ever happened to me. It was a good record, and I liked it. To accommodate David, I thought I would do a record that was a combination of that one and one that I was already hearing in my head to follow up. The second one, Trans , was inspired by my son Ben and his communication challenges. Because of Ben's quadriplegia, he couldn't talk or communicate in a way that most people could understand, so I made a record where I sang through a machine and most people couldn't understand what I was saying, either.I felt like it was art, an expression of something deeply personal. I called it Trans, meaning trying to get across from one world to another, being locked in a body without an intelligible voice, trying to communicate through the use of machines, computers, switches and other devices. It was a very deep and inaccessible concept”