“Our family was starting. We kept on moving with our young lives, shortly afterward and took Ben Young with us everywhere. But pretty soon Pegi started noticing that Ben was not doing the things some other babies were doing. Pegi was wondering if something was wrong. She was young, and nothing had ever gone wrong in her life. People told us kids grow at different rates and do things at different times.But as Ben reached six months old, we found ourselves sitting in a doctor's office. He glanced at us and offhandedly said, "Of course. Ben has cerebral palsy."I was in shock. I walked around in a for for weeks. I couldn't fathom how I had fathered two children with a rare condition that was not supposed to be hereditary, with tow different mothers. I was so angry and confused inside, projecting scenarios in my mind where people said something bad about Ben or Zeke and I would just attack them, going wild. Luckily that never did happen, but there was a root of instability inside me for a while. Although it mellowed with time, I carried that feeling around for years.Eventually Pegi and I, wanting to have another child after Ben, went to se an expert of the subject. That was Pegi's idea. Always organized and methodical in her approach to problems, Pegi planned an approach to our dilemma with her very high intelligence. We both loved children but were a little gun-shy about having another, to say the least. After evaluating our situation and our children, the doctor told us that probably Zeke dis not actually have CP-he likely had suffered a stroke in utero. The symptoms are very similar. Pegi and I weighed this information. To know someone like her and to make a decision about a subject as important as this with her was a gift beyond anything I have ever experienced. It was her idea, and she had guided us to this point. We made a decision together to go forward and have another child.”

Neil Young

Neil Young - “Our family was starting. We kept on moving...” 1

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“When does the enchantment start?We were sitting side by side, facing the mountains."It started when the earth was born." Her eyes was closed. Her face was golden in the setting sun. "It never stops. It is, always. It's just here."So what do we do?"She smiled. "That's the secret." Her cupped hands rested in her lap. "We do nothing. Or as close to nothing as we can." Her face turned slowly to me, though her eyes remained closed. "Have you ever done nothing?"I laughed. "My mother thinks I do it all the time.""Don't tell her I said so, but your mother is wrong." She turned back to the sun. "It's really hard to do nothing totally. Even just sitting here, like this, our bodies are churning, our minds are chattering. There's a whole commotion going on inside of us.""That's bad?" I said."It's bad if we want to know what's going on outside ourselves.""Don't we have eyes and ears for that?"She nodded. "They're okay most of the time. But sometimes they just get in the way. The earth is speaking to us, but we can't hear because of all the racket our senses are making. Sometimes we need to erase them, erase our senses. Then maybe the earth will touch us. The universe will speak. The stars will whisper.”

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“Ben Young is out on the deck with his team, having breakfast through his tube. I wonder how that feels. He seems to be content with it, although I am having some trouble reconciling the fact that Ben does not get all the big tastes anymore. He used to love Milanos and milk after every evening dinner. It was a tradition. Sometimes we still give him a tiny taste just for old times' sake. He is so accepting. It's a marvel. He is the most accepting human being I have ever met, and he is very happy. Not all the time, mind you; he has a flair for impatience if he is going somewhere and there is a delay. He just yells! You know he is pissed. There is no stopping him. More power to you, Ben Young!We had to stop feeding Ben Young by mouth because his lungs have become compromised by all the aspirating he does. It's a complex thing, eating. The body does a lot of work to protect itself and keep food out of the lungs. Ben's body is not working like a normal body does. Ben and Dustin and Uncle Tony are out on the deck listening to tunes on the computer and grooving. Ben's next support team is incoming for a shift. Uncle Marian and Ben Bourdon arrive in Hawaii today from the mainland, and the switch takes place around twelve-thirty. Time marches on. Because of the support, Ben has a very full life and keeps moving around, doing things, seeing people and going to events. I reflect on this. Life is good.”

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“That's because May takes in things differently than the rest of us do." August reached over and laid her hand on my arm. "See, Lily, when you and I hear about some misery out there, it might make us feel bad for a while, but it doesn't wreck our whole world. It's like we have a built-in protection around our hearts that keeps the pain from overwhelming us. But May - she doesn't have that. Everything just comes into her - all the suffering out there - and she feels as if it's happening to her. She can't tell the difference.”

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“I told you,” Harry was saying to Ben. “I warned you. As soon as I saw her from distance, do you remember what I said to you?”“Yes, yes. You said she was trouble. You where wrong there, and you’re wrong now.”“Benjamin, I know about these things. She is trouble.”“You know nothing except the idiocy you glean from your insipid books that tell you nothing about life. You don’t know how to live.”“And you do?”“Yes, I do. She is no trouble. She is Life!”Harry rolled his eyes to the heavens. “More fool you. How else do you define trouble?”“Like a femme fatale,” Ben said.“Give her time, Benjamin. She is a fille fatale. Quattordici indeed!”Ben moved away from mocking Harry, his shoulders dropping.”

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“Well,' she said, adjusting a pot lid, 'I have my family of origin, which is you and Mom. And then Jaime's family, my family of marriage. And hopefully, I'll have another family, as well. Our family, that we make. Me and Jaimie.'Now I felt bad, bringing this up so soon after Jamie's gaffe. 'You will,' I said.She turned around, crossing her arms over her chest. 'I hope so. But that's just the thing, right? Family isn't something that's supposed to be static or set. People marry in, divorce out. They're born, they die. It's always evolving, turning into something else. even that picture of Jamie's family was only the true representation for that one day. But the next , someone had probably changed. It had to.'...Later, when the kitchen had filled up with people looking for more wine, and children chasing Roscoe, I looked across all the chaos at Cora, thinking that of course you would assume our definitions would be similar, since we had come from the same place. But this wasn't actually true. We all have one idea of what the color blue is, but pressed to describe it specifically, there are so many ways: the ocean, lapis lazuli, the sky, someone's eyes. Our definitions were as different as we were ourselves.”

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