“Our family was starting. We kept on moving with our young lives, shortly afterward and took Ben Young with us everywhere. But pretty soon Pegi started noticing that Ben was not doing the things some other babies were doing. Pegi was wondering if something was wrong. She was young, and nothing had ever gone wrong in her life. People told us kids grow at different rates and do things at different times.But as Ben reached six months old, we found ourselves sitting in a doctor's office. He glanced at us and offhandedly said, "Of course. Ben has cerebral palsy."I was in shock. I walked around in a for for weeks. I couldn't fathom how I had fathered two children with a rare condition that was not supposed to be hereditary, with tow different mothers. I was so angry and confused inside, projecting scenarios in my mind where people said something bad about Ben or Zeke and I would just attack them, going wild. Luckily that never did happen, but there was a root of instability inside me for a while. Although it mellowed with time, I carried that feeling around for years.Eventually Pegi and I, wanting to have another child after Ben, went to se an expert of the subject. That was Pegi's idea. Always organized and methodical in her approach to problems, Pegi planned an approach to our dilemma with her very high intelligence. We both loved children but were a little gun-shy about having another, to say the least. After evaluating our situation and our children, the doctor told us that probably Zeke dis not actually have CP-he likely had suffered a stroke in utero. The symptoms are very similar. Pegi and I weighed this information. To know someone like her and to make a decision about a subject as important as this with her was a gift beyond anything I have ever experienced. It was her idea, and she had guided us to this point. We made a decision together to go forward and have another child.”

“Ben Young is out on the deck with his team, having breakfast through his tube. I wonder how that feels. He seems to be content with it, although I am having some trouble reconciling the fact that Ben does not get all the big tastes anymore. He used to love Milanos and milk after every evening dinner. It was a tradition. Sometimes we still give him a tiny taste just for old times' sake. He is so accepting. It's a marvel. He is the most accepting human being I have ever met, and he is very happy. Not all the time, mind you; he has a flair for impatience if he is going somewhere and there is a delay. He just yells! You know he is pissed. There is no stopping him. More power to you, Ben Young!We had to stop feeding Ben Young by mouth because his lungs have become compromised by all the aspirating he does. It's a complex thing, eating. The body does a lot of work to protect itself and keep food out of the lungs. Ben's body is not working like a normal body does. Ben and Dustin and Uncle Tony are out on the deck listening to tunes on the computer and grooving. Ben's next support team is incoming for a shift. Uncle Marian and Ben Bourdon arrive in Hawaii today from the mainland, and the switch takes place around twelve-thirty. Time marches on. Because of the support, Ben has a very full life and keeps moving around, doing things, seeing people and going to events. I reflect on this. Life is good.”

“We shared a piece of Poncho's apple pie, and I told Poncho about PureTone. Like all serious musicians, he is depressed by the quality of sound the people's music id delivered in today. That is the impression I have gotten from every Musician I have met. Everyone. After he heard PureTone, Ben Bourdon, one of Ben Young's caregivers asked me if I was making war on Apple. I said, "No. I'm waging heavy peace.”

“You might notice I refer to my son Ben as Ben Young all the time. Larry (Johnson) always called his son Ben Johnson. I liked the pride with which he would say "Ben Johnson." It is a lingering memory of his great spirit.”

“So I spoke to my old friend Bruce and told him I was feeling it, his loss of Clarence. We talked for quite a while, and there is no need to go into what two old friends had to say to each other at this point, except to say that two old friends spoke to each other about their music, their muses, their partners in crime, their proof, their friendship, their souls and their lives. Ben Keith was my Clarence Clemons. Clarence Clemons was Bruce's Ben Keith. When he died last year it touched me to the core. I don't want to ever think of any one else playing his parts or occupying his space. No one could. I can't do those songs again unless it's solo. So I told Bruce, "Waylon once looked at me and said, 'There's very few of us left.'" He liked that. I told him when he looked to his right I would be there. That's enough. I'm not talking about that anymore.”

“Pegi just recorded "I Don't Want to Talk About," written by Danny Whitten, the original Crazy Horse guitar player and singer who's all over Early Daze, an album of songs from the beginning of Crazy Horse that I have been working on compiling recently. Danny was every bit the artist I am, but he died of a heroin OD in the early seventies. Every time I hear Pegi sing that song, it makes me tremendously sad. She sings it so beautifully, phrasing it to break my heart. She does it justice. You can see I have some unfinished business with Danny.”

“Bruce is still my friend. We don't talk much. We don't have to. He is great and in his own league. I'm not him and he is not me. But we are on similar paths, writing and singing out own kind of songs around the world, along with Bob and a few other singer/songwriters. It is a a silent fraternity of sorts, occupying this space in people's souls with our music. Last year, I lost my right-hand man, the pedal steel guitarist Ben Keith. This year Bruce lost his right-hand man, the saxophonist Clarence Clemons. It's time for another talk; friends can help each other just by being there. Now both of us will look to our right and see a giant hole, a memory, the past and the future. I won't play with another steel player trying to recreate Ben's parts, and I know Bruce won't play with another sax man trying to play Clarence's. Those parts are not going to happen again. They already did. That takes a lot out of our repertoires.”